Okay so sometimes, I don’t know why or what triggers it — I get this really gross buildup of gunk in my throat.
You remember that book I’ve written which makes a detailed mentioning of my experiences living with a PEG tube?
Candidly, no one was reading it.
How do you keep the site clean?
Does your mouth taste bad, does your breath smell bad?
So, I wore out the end of my first PEG tube. The flange that held the plug in place was tearing off. I went to St. John’s radiology department and they had me in and out in less than half and hour. What was funny: at the point where the actual extraction / insertion occurred, the Dr. said “you ready?” then tug, pop, it was over in less than 5 seconds. I don’t think they even had to use any local anesthetic. It is truly easy. And my new one has a replaceable end that’s made of a more sturdy plastic – this one should last more than the 6 months life span of the first one.
But hey! look at this, it’s called a ‘button’:
Next time (and I’m in no hurry, I hate going anywhere near a hospital!) I might think about getting a ‘button’. A person who interacted on this blog suggested I look into it. There appears to be quite a difference in convenience. Right now I have a ‘sling’ my wife made to keep the PEG up and out of the way of my belt, etc.
The pouch is handy and I’m grateful. But compare this to a button. There’s nothing hanging:
There’s an apparatus that comes with the button that ‘plugs in’ to the button and functions just exactly like the outer portion of a regular PEG tube.
Huh… learn something new every day!
Have a good PEG day!
Tell you what: it’s time we got some interaction going!
I’m fortunate – I’m up and about. My PEG has made my life much better! In the months before I was hospitalized for pneumonia, I was coughing at every meal and as it turns out, getting sicker each time I tried to eat or drink.
As most of you know, the procedure for PEG insertion is no big deal. And once the good doctors at St. John’s in Springfield Illinois got me set up and I went through a couple months of ‘breathing treatments’ to get rid of the junk in my lungs, I was up and running – well, walking really…
I’ve always exercised – running until I got older, then walking at least 2 miles each day – outdoors in the weather unless it was so bad I had to resort to the treadmill. I believe that regimen allowed me to recover quickly.
I still have some problems with keeping my lungs cleared. Requires vigilance and lots of spitting, sometimes in not the most comfortable circumstances.
So that’s me. It’s good that I’m feeling healthy and keeping my weight regulated. But it’s not so good that I’m never gonna eat or drink again…
What about you? Are you up and ambulatory? Are you on the PEG for the foreseeable future like me or just until your medical conditions improve? Either way, I’d sure like to hear from you!
To make it worth your while to respond, I’ll offer a free uplifting song. Here’s the link:
Pick any song you want – to download to your player. I recommend: 03_bevs_song.m4a
Lord, we sure could use a Miracle today!
Have a good PEG day!