I spent almost 70 bucks for this gizmo. Seems like a lot, but consider: I use it 5 times every day.
So, as you can see, I put my syringe into the holder… Hands free!
In the morning I can read the paper — nothing as challenging as trying to fold the baseball insert with one hand. Can also play cards with my wife or tear the labels off the Jevity cans for recycling…
What will they think of next? (BTW: Thanks to David Rowland for turning me on to this.)
Have a great P.E.G. day!
Went for a canoe trip with my dog today at Beaver Dam State Park. Great time.
Stopped half way, at the dam, and had brunch (9:30 am feeding). Some hikers came by and said hi in passing. One of them mentioned that her brother is on a feeding tube. Small world…
I found that packing my feeding gear in a waterproof tub worked fine. Living well…
Anyway, life is good. My dog enjoyed it too — I think!
Have a Great PEG day!!
We enjoyed our second travel experience since beginning life on a P.E. G. All went very well indeed!
We drove from Brighton IL to Tupelo MS and on to New Orleans LA — and back the same route — to visit my brother and some wonderful OLEY friends.
At home, I’ve kept a rigid feeding schedule to maintain my weight and make a full recovery from aspiration pneumonia.
On the road, I found that time got away from me a few times — I would look at the clock and find myself an hour past my regular feeding time. I’m glad to say I was able to adjust, just like I would if I were a ‘mouth feeder’. I simply had half a can less of Jevity or even skipped a can if it would make me bloated on my next feeding.
I was careful, though, to always get all of my water — even if I was late! Missing a can of Jevity — here or there — is no different than ‘mouth feeders’ changing their diet to accommodate their travel schedule. But for us PEGgers, never, never, never skip hydration. I may be two hours off schedule but I will get my water and meds!
As long as my day includes the full component of hydration, I can make due in the short term by altering my Jevity intake. Wow, I feel like a ‘regular’ guy — Living (not just surviving) On A P.E.G.!!
Have a great PEG day!
Well, time to pack up all my gear…
We’re going on a week-long trip.
Let’s see: 3 cases of Jevity 1.5; 2 gal. of pure water (can buy more anywhere); extra tubing, syringes,med. cups, throat brushes; meds; spare MIC-KEY button (just in case).
Hope I thought of everything.
No worries. Looking forward to our trip to Louisiana to see Errol, Jo and Duval! With a side stop coming and going to visit brother Ron and his wife Leslie.
Remember this picture from Cool Hand Luke? Where Paul Newman eats 50 eggs?
It’s been well over a year and I promised my Dr. I’d get tested again for swallowing. I cheated and tried drinking about 5 ml of water the day before and felt like I was drowning — so I had no hope at all.
So, they stood me sideways at the x-ray machine. Then they gave me a plastic spoonful of white pudding. Tasted pretty good. I swallowed… and swallowed… and swallowed…
Nada! Zip! Bupkiss! The pudding got as far as the base of my tongue and just sat there.
The poor x-ray tech kept saying ‘It’s okay, go ahead and swallow now.” As if!
Nothing ventured, nothing gained. Life goes on. If at first you don’t succeed try, try again. Add you favorite axiom here:_______
Have a good PEG day!
May 3rd is my HAPPY P.E.G. DAY!!!
One full year of unexpected extra life thanks to:
1. My darling wife Karen (and the rest of my wonderful family) – who helped me to choose life!
2. Dr. Kakumani – who insisted I at least try!
3. The people at OLEY and Inspire – who have been a constant inspiration!
4. The people at SW Illinois SCORE (especially David, John, Bob and Joel) and at Bookshare – who helped me find purpose!
5. All the trains that go rushing through Brighton – a constant reminder of how truly down, depression can be!
Happy P.E.G. day!!!
So, I just finished a nice early Sunday afternoon walk. A great time to enjoy a beverage!
I brought my feed line and a syringe/beaker out into the sunshine. I plugged in the feed line and poured 30 ml of Keystone Light into the syringe/beaker and waited for the pause that refreshes…
And waited… And waited…
Apparently the carbonation makes beer — and to be fair and balanced, it WAS a Light beer — not heavy enough for gravity flow.
I had to go back in and get a syringe with a plunger. Push — slow and easy — I enjoyed my beverage.
BTW One very nice outcome… I belched (and tasted it!)!
Have a Great P.E.G. day!