I gotta tell you about The OLEY foundation!
Here’s the link: http://www.oley.org/
And their mission: ‘Enriches the lives of those requiring home IV & tube feeding through education, outreach, & networking.’
‘MY HPN’, is an educational tool to help Home Enteral Nutrition consumers (HEN) patients improve their health and quality of life. The ‘Take Charge’ module is a marvelous video! <BTW — Enteral Nutrition: a way to deliver nutrients through a tube if you cannot take food or drink through your mouth.>
There are tabs for ‘Travel Tips’, ‘HPN Research’, ‘Equipment-Supplies’ and many more.
I’ll give you an example of one thing I learned in perusing their materials: See, at the hospital, the nurses always mixed all my morning meds and force-pumped them down. Well at home (all this time) I’ve been trying to do the same thing. The meds make almost a paste — a big sticky mess to cope with. Oley’s solution (duh!): process the meds one at a time. Since I only take one or two meds the rest of the day, I know that’s not messy! I can’t wait to start using this idea tomorrow morning. So simple… but as patients we tend to do things like the nurses showed us. Live and learn!
The OLEY foundation! http://www.oley.org/
You gotta go see this site!
Have a great PEG day!